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KMID : 1011120200130020039
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Bioethics Policy Studies
2020 Volume.13 No. 2 p.39 ~ p.57
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Primary and secondary use of personal health information: social context and governance issues
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Kim Jai-Yong
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Abstract
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The Personal Information 3 Acts was passed at a plenary session of the National Assembly on January 9, 2020. However, there are many misunderstandings and incorrect reports in terms of definition and interpretation. Pseudonymized data are definitely subject to personal information protection, and, they can be processed and used without consent from the information subjects only for the purposes of statistical writing, scientific research, and preservation of public records. Contrary to the recent international trend of strictly regulating commercial use, the revised law has defined private investment research as scientific research as long as scientific methods are used. This rather raises social controversy and uncertainty and creates serious problems that weaken the credibility base. In particular, the premise of utilizing personal health information, which is sensitive information, is individual rights and interests. A safe social system should be established to ensure this. To this end, we must first open a forum for public debate on the purpose and scope of the use of personal health information. A transparent system is needed to pursue the primary purpose of addressing the safety and quality of service issues of the people and the secondary purpose subordinate to it. We should also create a secure supervisory system that can practically manage the information and communication technology environment in which health big data is run.
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KEYWORD
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protectionofdata, health, bioethics
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